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Lebanon PA News

Thursday, November 21, 2024

House Adopts Schlegel Resolution to Raise Awareness for Rare Disease

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State Rep. John A. Schlegel | Pennsylvania 101st Legislative District

State Rep. John A. Schlegel | Pennsylvania 101st Legislative District

The House of Representatives passed House Resolution 251, co-sponsored by Rep. John Schlegel (R-Lebanon), designating May 2024 as ALSP Awareness Month in Pennsylvania. ALSP is a rare hereditary disease often misdiagnosed due to symptoms resembling other diseases. Symptoms include mobility decline, muscle spasms, reduced pain sensation, and psychological changes. ALSP typically manifests in one's 40s and can be passed on to children. There is no cure.

"Heidi Edwards of North Lebanon Township has lost several family members to ALSP, including her mother, two sisters, an aunt, an uncle, and one of her nephews is already exhibiting symptoms," said Schlegel.

"Heidi is my constituent and a friend of my colleagues Reps. Tim Brennan (D-Bucks), Jamie Barton (R-Berks, Schuylkill), and Tim Twardzik (R-Schuylkill), who co-sponsored this resolution with me," said Schlegel.

For more information about Sisters’ Hope Foundation, visit sistershopefoundation.org/.

To see Schlegel’s remarks in support of the resolution, visit [here](http://www.repschlegel.com/).

Representative John Schlegel

101st Legislative District

Pennsylvania House of Representatives

Media Contact: Donna Pinkham

717.260.6452

dpinkham@pahousegop.com

RepSchlegel.com / Facebook.com/RepSchlegel

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